wiki:KeyGoalTracking

In response to communications issues raised in the Oct 1 GPC global call, this a big picture of key deliverables and how they relate as well as what each site should focus on. Please consult GPC groups and staff contacts in case any of this is unclear.

Summary: Key Site Deliverables

Progress toward key goals by each site (e.g. DevTeams), in brief:

KUMC CMH UIOWA WISC MCW MCRF UMN UNMC UTHSCSA UTSW MU IU
Patient Engagement Council Representatives Named Y Y Y Y Y Y Y Y Y Y Y Y
i2b2 implemented (counts on babel #1) #1 #58 #1 #1 #1 #36 #1 Y (#64) #74 #1 #345 #394
Tumor Registry loaded (on babel) Y n/a #168, #330 #239 Y (#169) Y #172, #329 #170 #171 Y #344 #443
Data Builder deployed #202 Y #218 #205 #219 Y? #217 Y? Y Y Y
Breast Cancer Survey Deployed based on finder file #227 Y n/a Y #312 Y Y Y Y #311 Y
Breast Cancer Patient Mapping #385 Y n/a Y Y Y Y Y Y n/a Y n/a n/a
ALS Survey on REDCap Y n/a Y Y Y Y Y Y Y Y
ALS Survey Sent #284 Y n/a Y #399 Y #400 Y Y Y Y n/a n/a
Obesity survey deployed #254 Y Y Y #442 Y Y Y Y Y Y n/a n/a
HMRFS (Obesity) survey results submitted #379 #445 Y Y Y Y Y Y Y n/a n/a
CDM, PopMedNet running #154 #161 #162 #166 #148 #14 #147 #163 #164 #165 #343 #395

+ a number of sites have BMI percentile loaded in i2b2 and ready to query, but not aligned with the recent vitals design (#23).

Breast Cancer Survey and Cohort Characterization

UIOWA leads the survey and cohort characterization for GPC's common condition, Breast Cancer:

The survey was launched in July 2015, with a response rate of over 60%.

Much of the GPC governance and technological approach was pioneered in the context of the breast cancer survey.

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For details, see BreastCancerDataSharing, milestone:bc-tracker-wp2 and milestone:bc-survey-cohort-def.

Analysis of the data is in progress; for details, see

Protocol for Protecting Breast Cancer Patient Identifiers

Reference:

This goes beyond the GPC data sharing governance process; it's specific to the breast cancer survey study protocol. We plan to use our IRB reciprocity process.

Note inclusion of DataRepositoryManagement by reference in the GPC data sharing agreement.

ALS Survey

The ALS survey was deployed starting in May 2015. Discussion at LEC 2015 in October showed most sites well under way.

relevant tickets:

Ticket Summary Owner Type Status Priority Component
#173 REDCap for ALS survey at each GPC site lv enhancement closed major data-sharing
#197 REDCap data dictionary for ALS survey badagarla enhancement closed major data-sharing
#208 Formulate ALS survey plan and test it at one site badagarla task closed major data-sharing
#247 i2b2 query to select initial ALS survey cohort dconnolly design-issue closed major data-sharing
#248 spreadsheet of ALS honest broker query results for import to REDCap badagarla design-issue closed major data-sharing
#284 Deploy GPC ALS Survey at GPC sites bzschoche task closed major data-stds
#399 WISC ALS survey on regulatory stand-by mish problem closed major data-stds
#400 ALS cohort selection query performed poorly in MCRF setting lv problem closed major data-sharing

diagram moved to ticket:208#comment:19

Weight and Health survey

UTHSCSA leads the survey and cohort characterization for this cohort. They established a GPC obesity survey readiness table for #254.

fixed resolution tickets:

#33
data elements for obesity cohort characterization
#138
top labs, meds, procedures query, plug-in (UTHSCSA-CIRD/chinotype)
#139
insurance status for obesity survey cohort
#140
socio-economic status based on geographic context
#210
Query by BMI percentile among children.
#218
data builder at CMH
#219
data builder at WISC
#220
Data Builder DB access via JDBC and jboss datasources
#221
Weight and Health survey data request plan
#228
refine DataBuilder output for traditional analysis (UTHSCSA-CIRD/datafinisher)
#249
establish GPC Weight and Health survey protocol
#250
Weight and Health survey cohort i2b2 identification query (pediatric)
#252
collect test results of Weight and Height cohort selection queries from all sites
#253
obesity survey REDCap tracker and tools
#254
Weight and Health survey cohort: prepare contact information and begin collecting survey responses (all sites)
#301
obesity cohort characterization
#379
Link EHR data to Health and Medical Research Family Survey (HMRFS) 2 results
#404
How to export and collect non-identifying fields from the HMRFS REDCap survey?
#442
Weight and Health survey using Mychart at WISC
#445
submit HMRFS survey results
#458
sqlite validation tool for Weight and Health survey
#474
DataBuilder at MCW
#481
Obesity Study results errors for MCW
#505
share DataBuilder work-alike in use at UIOWA
#570
collect expanded obesity cohort data: demographics, income, insurance / financial class
#639
MCW Height/Wt data only covers survey respondents

wontfix resolution tickets:

#487
UTSW HMRFS (obesity) survey data pending input from Children's Hospital

The following high-level plan is based on based on a 1 Oct 2014 draft of Approach to Characterization of “Weight and Health” Cohort:

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PCORNet DRN (CDM) query readiness

MCRF is the lead site, given their experience with mini-sentinel and popmednet. They initiated DRN Status at GPC Sites and the gpc-popmednet mailing list.

UNMC is the first site to be evaluated by the coordinating center:

#240
Data Characterization queries for phase 1 CDM V1 compliance

DataRepositoryManagement: for DRN queries, a GPC-aligned i2b2 includes at least:

  • GPC Demographics (#67)
    • GPC Enrollment (#229)
  • GPC Diagnoses (#63)
  • GPC Encounters (#155)
  • GPC Procedures (#243)
  • GPC Vitals (#23)

We evaluate DataStandardization alignment quarterly.

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Cohort Characterization

This section is being folded into the 3 cohort sections above.

#31
data elements for ALS cohort characterization
#32
data elements for breast cancer cohort characterization
#33
data elements for obesity cohort characterization

  • GPC Demographics (#67)
  • GPC Diagnoses (#63)
  • GPC Encounters (#155)
  • GPC Enrollment (#229)
  • GPC Procedures (#243)
  • GPC Vitals (#23)
  • GPC Labs (#68)
  • GPC Medications (#78)
  • GPC Cancer Tumor Registry (#185)
Last modified 2 years ago Last modified on Mar 4, 2016 6:38:57 PM

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